You have to set your own rules
Autism is or can be very negative, there will be stages were you feel isolated , alone , feelings that your now a prisoner , can’t envisage change to your current situation but after you have digested the news and researched ,you build , and by building I mean you network as it’s these networks that will keep you going in the dark times, it’s very hard for a parent to decline invitations , carefully plan anything outside of the home and for most people with little kids, this way of living is completely alien .
im reading more and more blogs and posts about parents feeling isolated , at there wits end ,and the comments I leave are similar to the comments that stayed with me when I needed support , your already doing this, set your own rules, none of us want to play the autism game you feel robbed , it’s unfair , my life is gone , everyone else has freedom and yes all of that is partyly true , but being an autism parent is a community and the support is there be open, listen to others problems, reflect , maybe you will realise that there is always someone worse off , I found this to be the case for me , I created ways to not be alone, with other autism parents, there was no judgment we were all in fact very similar .
Don’t feel isolated take control , autism’s game but your rules , I’m a princess about it , if something doesn’t work I don’t go along with it , I tweek, manage things your way, ask for the tools you need to function , knowone is going to offer , ask and you will find once your in control you will find things more manageable , it’s your journey not theirs 💙
I must say I’m very much enjoying blogging the internet is joining hands across the world to support each other parent children with autism , it’s tough but you got this 💙
tomorrow is a new day , keep getting back up , keep going and if you fall there will be a helping hand but you have to be honest with yourself and others , there are no hero’s but there is help 🌈💙 when I’m laying awake worrying about Oscar at midnight I can always find comfort in a support group online a kind word , a tough word ☺️,an ear to listen I pay this forward to anyone who needs it 💙
self care is vital for autism parents, this issue isn’t going to disappear so you have no choice but to work with what you have , this attitude will bring you strength ., tool up, ask for everything on offer , find out what you are entitled too, join local support groups , be open to forming new relationships with professionals and other adults that you meet along the way
I have met so many very strong individuals through autism support , I’m in ore if there kindness 🌈
In the early days this is how I felt just me and Oscar alone in autism , I keep this photo handy always to remind myself of how far we have come 💙