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Born Anxious is a homegrown clothing label with two objectives, to make the clothes as comfortable as possible, whilst also remaining planet friendly, and to hold important information that will aim to help not only the child, but also the caregiver as well when required. As an autism mum myself, I have thought about what could help me and other caregivers whilst trying to be as generic as possible within the designs, alongside giving those the opportunity to personalise their products as well.


The future , once I’m dead!!!! Hard to approach  but it’s got to be spoken about 💀

The future , once I’m dead!!!! Hard to approach but it’s got to be spoken about 💀

Something that’s always on my mind , whether it’s at the back of my mind or I’m obsessing about it ,if I’m feeling vulnerable it’s always there! 

The one topic none of us want to talk about ! Death

IF YOU DONT WANT TO READ MY MORBID THOUGHTS ITS BEST YOU SKIP THIS BLOG  

Death is something I have openly discussed with other special needs parents in the past , I think parents of children with children that have disabilities are giving this topic more thought an intensity, because of the level of vulnerability  and care planning we have to consider , any parent  doesn’t want to think about dying and leaving there kids but, planning takes place to take care of legalities  when the time comes, and can openly discuss  with your children as they grow up so everybody is aware , those plans include the expectation that your children grow into well adjusted adults ,and are independent and even then it’s a sensitive subject naturally , this plan will be in place for my neurotupical children , however with Oscar we are faced with a different story, he’s 5 now the futures unknown , how am I to know if he will ever be independent?,I can’t know yet the level of his learning difficulty so in my planning, I’m taking into consideration life long adequate care for him as Autism is life long .

i have to consider his siblings and the level of input they may want/ not want with him , it’s lovely to think they would care for him once I’m gone but I can’t expect this , I wouldn’t expect this, they will have lives of there own , families of there own , I would never want them to feel it’s expected they care for him , I’m planning on living a very long life and while I’m on this earth he will not leave my side , that’s not hard for me.

He will have a self contained extension of the house that will have a connecting door should he wish to join us ,it also allows us to ensure his safety  at all times  and respects his privacy also , those plans I already have passed by the council , why now ?he’s five right? Well because in my mind I need to know that’s in place for him should I all of a sudden not be here unplanned, for when he is older  , I can’t expect everybody to give up there whole lives, I want everyone in my family including Oscars dad to do whatever they need to do in life, travel the world visit countries they feel they need to and have that freedom , I hope to continue Oscars love  for travel but should this change I would be  happy to stay back with Oscar as I do have my own life, social life and beautiful friends,  and I allow for that while Oscar is in school or in bed , but the rest of the time is for him and my other children ,and I understand the rest of my life is too and that’s ok it comes with the territory of being a special needs mum 💙 all the time he needs me I will be here and even when/ if he needs independence I will never be far away , that’s the way things are 💙

my dreaded fear is if I die before Oscar is grown , it’s a fear I have for all my children but for him it’s more fear , don’t get me wrong if his needs were met I’m pretty sure he might not even notice😂 I’m not sure he has the emotional understanding of missing someone or any measure of time, he’s very in the moment , I just worry that he could be feeling those things but it goes unseen , it’s something I really worry about it never goes away , life is for the living I know that, I have spoken to many Autism parents and parents of children with special needs and every single one has said the same thing , it’s a deep routed fear . 

I find short term planning and living in today works for me ,when I feel this way as it comes in waves , rather than looking too far ahead but knowing you do have that long term plan in place if that makes sense .

I think also it’s really healthy to be open about those fears and not carry them around with you , there isn’t a fix but it’s good to share and know others too face this and your not alone .  

Its really important to make a will when you have special needs children or children in general ,and this is something I now feel ready to do , it’s going to be emotional I know but needs must  💙💙💙

my ever full , broken heart  

 

 

 The national autistic society have done useful information about long term planning for Autism

 https://www.autism.org.uk/freeguide#

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The walking wounded

The walking wounded

Managing guilt

Managing guilt

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