My first goal in 2019 is to be more mindful , in general I’m pro SEN, and yeh I get on my soapbox about it ,it’s my mantra ,it’s my life breath as a parent of a child with a complex diagnosis, that attends a special needs school that has complicated behaviour, and health issues I make it my job to advocate for him and others big and small.
I have a clothing line I created to get right in your face about being more Autism aware ,and no I’m not sorry about it, it’s not an epidemic , there aren’t more as some believe it’s just recognised ,and if you entertain that thought and your not an idiot!!! you will come to this conclusion ! WHATS HAPPENED TO ALL THOSE UNDIGNOSED! How hard must they have had to work ? How different would there lives have been with early intervention ?
This new generation of children on the spectrum that have had early intervention really will be the tell all ,for us Oscar couldn’t have gotten any more support really , yes the systems flawed , yes they get the very minimal but the people he has had in his life so far and what they have strived for him is outstanding, so for that I’m mindful for his future and not taking anything for granted .
I think I need to be more mindful in general of NEED , what people might need from me? My kids , my husband ( most likely he will need a slap )but we will see?!! , both our sets of parents? Siblings , friends how can I be more of a support to those people that have poured into me and my camp so far , I want to be more mindful of society , what contribution do we make to the community? As people and as a unit , what could we take part in to start building on a Kinder community with awareness for our kids mainly Oscar , my other two are more likely to contribute to the safety net, where as Oscar is the one that will rely on it .
I’ve been in a bubble really, I’m a bit unaware of Brexit and the country’s position and world affairs, I just feel at times it can be added stress , selfish? Yeh maybe but there’s only so much worry you can carry, and the big stuff is out of my control, but it got me thinking, I do need to be aware?? as my 11 year old started quizzing me on trade deals today and I had no clue, don’t worry he had a motif it wasn’t random, he was worried that we might not get any imports of anything he needs and return to the 1940s! But when your kids are more aware than you on current affairs you have got to wake up!
So yes mindfulness is on my list for 2019 be more aware of those around me ,take a bit less out and start putting stuff in , I’m pretty good with people ,I do have lots of people I chat too regularly , some needing my support but I think in general I’m going to brush up .
Autism doesn’t like people, there too demanding, but I do! my son has Autism not me ,and so it is time to organise our Autism allow for it ,but not let it take over , which I think it mostly ruled in 2018 , we love oscars Autism it’s part of him, some days it gets the better of him ,shuts him down, he can’t function he battles with it, he’s frustrated , other days he’s more able to cope and he’s winning, but for mums there are no good/ bad days, I think we carry the same fear, guilt, sadness all the time , it would be nice to think we could take a day off, or have a break from that , and I think maybe being more mindful of others may bring perspective 🌈