Could we be about to find out why our Autism is the angry kind 😶
There’s so many versions of how Autism presents it’s a neurological brain disorder so personality comes into it , the spectrums very vast and reading some support posts in American groups, it seems they diagnose very differently and give broader terms on severity ,how that’s measured im not sure , but they have level 1,2,3 ect , for us in the uk it’s ASD AUtism sorctrum disorder .
One thing I do know is oscars been attending specialist nurseries since before he was two, so we have been around other children who have Autism for three years, and Ive always observed them and found oscars different , there all different yes I know that, and you never see the whole picture, but even as his mum I can say he’s so much more angry in response to the other Autistic kids I have met, and he seems to have so many more behaviours and things that upset him , some have calmed as he’s grown and some have got worse, but I have always known Oscar has had severe sensory needs and in my mind a personality disorder , I’m not saying for a minute that my child is harder or worse than others, how could I know that??but I just have this feeling that I know he’s a big deal, and I had many many appointments to be told wait and see, wait and see, once he starts school he will calm down , he will adjust as he grows, he will start to calm down but we have this cycle which I think follows the moon, I can’t be sure but even with medication sometimes he’s so stricken with anxiety that we are literally house bound , everything is negotiated, which shouldn’t be the case with the brain relaxants he is on ,plus epilim he should be a lot calmer than he is with minimal absences, but there seems to be a reason why there not always taking effect ,and that I struggle with as he takes an awful lot of medication for a small boy ,and you take medicine to ease symptoms of something if it doesn’t work it’s pointless , and make some side effects like suppression of appetite not worth it .
Oscar has his consultant appointment with his new doctor on Friday , his old consultant had diagnosed him and seen him 3/5 times for regular assessment and management of his Autism, but she retired and I was a little apprehensive about change as she knew him so well ,but we have a new consultant he had read the file before we arrived, and was really switched on regarding Oscars current behaviours associated with his Anxiety, and abscences and was complete with a plan A and plan B depending on the result of his sleeping EEG that is in the pipeline , he made observations regarding oscars fear of hands it’s a trigger for attack ,he will attack you unless you hide your hands! But also checked his heart rate and he found it to be unusually high based on oscars state of anxiety ,he has prescribed a third medication for three months to try and calm him down as he has been attacking teachers and other children at school, as he is unable to control his anxiety level , I really hope this medication works as I want him to enjoy school and not be anxious , the doctor will see us again to plan further once we have the results of the tests as I did make it clear that’s a lot of medication to put into such a small boy , he agrees and whilst there are no long term effects it is a short term fix until we have the results .
so I’m faced with yet again updating his health record at school to keep them in the picture and giving my son further medication, for morning in his drink for seizures and anxiety and again at bedtime for sleeping and hope the scan date won’t be too far away as I’m dreading it , but in the same breath really do want to know the result so we can plan longer term .
feeling really hopeful for some light at the end of this tunnel we keep getting sucked into with anxiety , it controls us .