We must be approaching some kind of reprieve 🌈
The last two weeks have been such a roller coaster for us , Oscar was seen by his consultant and after chatting about current behaviours, triggers and his general well being and anxiety now he is at school, and taking into account his behaviour display in the appointment ! Which can only be described as a peacock effect !
The doctor felt it best to diagnose Oscar further with extreme anxiety and referr him further to a specialist for his anxiety ,this meant new medication, I was jubbious as he takes epilim for absences which is a brain relaxant, plus he takes another anxiety drug to help calm him at night both high doses but in light of his behaviour and sudden plummet into such high anxiety, I weighed it up as his mum and thought it could benefit him, I was then further put off again as when we got the medication I then found it’s not licensed , we called to discuss this and were put at ease and reassured that it wouldn’t affect current medications and would help realieve oscars extreme anxiety, it infact has had the reverse affect and with two calls now to his consultant and no return call I have made a desision to stop the new medication , mission fail and it’s ok to admit defeat , we still try harder tomorrow .
always evaluate what’s best for your child , two weeks of attempting to tweek this for Oscar it’s either zombie or the hulk with no inbetween and although I would saw off my own arm with a bread knife to take his anxiety away, there’s a limit no more, I can’t subject him to these extremes he’s unable to control ,we tried to suppress the areas of his brain that make him so unregulated, it failed instead it woke everything up leaving him terrified with extreme anger , when you get to the point that you are collecting your five year old son from an isolation room as he’s so violent they can’t control him in the class, he’s hurting adults and children you get to the point as a mum-where you think this isn’t fun at all 👎and it’s affecting him in ways that could become routine , and we can’t afford him to have a negative association with school he has many many years of education left , it is time for new planning for the prince , man up and tool up for this next stage , I’m keeping communication open with all professionals to hopefully all work together do some kind if reprive from what’s been a very stressful time for him and us , and it just makes me really grateful for the people that are supporting us and Oscar , who seems unaffected by the bigger picture which is good , but as his mum I know where this is heading and I’m not allowing it !!!!!ISOLATION! and it’s just not an option .
I’m not a doctor , I’m not a teacher , I’m not a therapist , I’m not a consultant I’m all of the above I’m his mum 💙