Born anxious is fuelling me 💙it must be as I've not slept in days!
First off I wanted to cover a bit more about festability that I attended last weekend and how much this event does for the SEN community .
THE NEXT DATE FOR THIS IS 20 June 2020
It's firmly in my diary already, a unique event and really does imprint on the lives of those that attend, it brings a sense if belonging, inclusion and freedom and acceptance , something many older people on the spectrum fight to receive on the social scene.
What I saw at Festability was a collective of the special needs community coming together to enjoy music, workshops, socialising in a festival setting there was complete acceptance for everyone including siblings and carers, and the atmosphere was amazing, imagine a good night out with no egos? Just fun, in a safe place it was very special and has been organised by three very strong women, who are held in very high regard within the special needs community each for different reasons, when they join forces amazing things happen ,and I hope each year it grows and grows, for even more people to enjoy ,I would imagine everyone who attended has the date already noted down for next year, I know I have 💙
You can find out more about Festability the amazing organisers and read reviews here
I also wanted to cover the links to my social media as collectively were quiet an army already and my plan is to grow this over the next 6 months, I will be updating you all with my first news letter soon💙
Insta Born Anxious
pinterest Born Anxious
You can subscribe to the website and receive blog notifications and our upcoming newsletter , we are building an army and want you all to join .💙
Now for the main body of my blog 😀😒😳
Most SEN parents are used to be tired beyond redemption, the sleep gets lost there's no way to ever catch up ,so we write it off! I'm actually beyond that! My little oscar hasnt slept through since Thursday night!!!!! its now Sunday, and I'm praying a million prayers he sleeps tonight, because if not!!!!! If notttt oh my God, what if he actually didn't! I hurt, no joke, I'm sore, I'm so tired everything is annoying me but I haven't energy to argue! I just cooked dinner on auto pilot!!
I've been spoilt with sleep with Oscar, but he is so full on during the day, I pass out at night, I do that stupid thing mums do and watch tv, fall sleep after ten minutes, in front of the tv!!!!!then still feel awful the next day as I've stayed up too late! What a fool, well the last two nights I have done this, and oscar has woken up at midnight! And not gone back to sleep again! he stayed awake all night! Why! My child is broken😂!
He has still the same amount of energy during the day! It can't be healthy to not sleep long-term,I'm well aware of sleep issues with autism and that many children have to have melatonin to sleep ,but Oscars always been good with sleep and it's literally gone from sleeping to NOT!!!!!surely it cant happen overnight! I just can't function on no sleep, I'm needed hands on during the day ,and today I've felt like I'm hung over, Except I haven't had a night out! It's totally not fair, some people are probably reading this thinking Jesus Christ, its two nights! Get over it!
But to deal with the behaviour, the control issues and the level of energy Oscar requires all day, just to keep him in a calm state I really need some sleep .
Full respect to all the parents of children who have had long term sleep issues I've had two days and I'm out, I quit,Not doing it, too hard, going to talk to his consultant tomorrow, how he will cope in school 9-3 on no sleep is beyond me!
But if you add it up Extreme anxiety, Absence epilepsy and Autism to add no sleep on top! No I'm not having that, no way.
As usual I did some research on my current situation, just to see if there's a magic cure!it was quiet useful , see below