Well I didn’t think I would be typing this in a million years but💙💙💙💙💙miracles have happened over the last week ,and it’s all thanks to a new drug available for my son , we tried it for two weeks!!!!!! too complicated to explain but we had a big clash with devestating consequences! so after some big talks lots of tears on my part😶 and feeling like I had hit wall, I stopped I opened my ears, I shut my gob and opened my mind and took the advise I was given , which is hard if you are used to giving your child a certain medication you are used too ,for two years, you rely on it, as the only reason you agreed a medication is because I was at the end of my tether with the behaviour, we now two years on know it’s extreme anxiety, but back then I got to the point I couldn’t do it anymore he was so distressed , so to be advised to stop that medication, that rescued our situation and allowed our child to function daily and sleep at night , I’m not going to lie I was nervous .
we did stop the medication, we had grown to rely on ,and began another last Monday , and it was a sudden change , he didn’t have to wean off it , was just a switch but I had to not medicate anything for one night, to avoid a cross over! The hulk isn’t pretty, which during the clash was how he was behaving!!! Extreme anger !
We did skip all medications for one night to leave 24 hrs until the new one started , but he slept, I thought it is a fluke , but 6 nights in he’s sleeping! All night! No medication🎉🎉🎉he’s cracked it ,hopefully this pattern continues I’m so chuffed for him , my child with Autism, extreme anxiety and epilepsy is put to bed in the dark ( his preference) and I leave the room , no tears, no fuss then he goes to sleep alone, and sleeps all night it’s literally the best feeling in the world 🌍
So without planning to we have cut out 15ml of anti anxiety medication successfully and replaced it with just 1.5 ml of an entirely different one and are seeing the benefits , Oscar hasn’t had any abscences in the last week , is skipping into school once again, and feels calm to be there, is taking part in class activities and talking more and his tolerances of those around him is growing, he is more in control of environmental factors around him that he was reactive too before and though anxiety and I really am thinking this is the break he needed💙💙
long may it continue 💙